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Research Registry

The CLF Research Registry

The CLF Research Registry comprises the Brain Donation Registry (BDR) and Clinical Research Registry (CRR). You may sign up for one or both.

BDR members will receive a personalized brain donor card and informational brochure. CRR members will receive regular communications recruiting them to clinical research studies on concussions and CTE. The Concussion Legacy Foundation is proud to collaborate with the Boston University School of Medicine and the U.S. Department of Veterans Affairs in the VA-BU-CLF Brain Bank, led by Dr. Ann McKee, as well as the Australian Sports Brain Bank, led by Dr. Michael Buckland. All international brain pledges are welcome; read more here.

For imminent brain donation matters, please call the 24-hour emergency donation pager at 617.992.0615. For imminent brain donation matters in Australia, email SPORTS Brain Bank or call the 24-hour line 1800 551 898. For imminent brain donation matters in the UK, please call the emergency brain donation pager at +44 (0) 7534 029 223.

If you would like more information about brain donation before selecting whether you'd like to pledge your brain for research, read these Frequently Asked Questions.

Please be advised that we are in the process of transitioning to digital brain donor cards. No new physical brain donor cards will be mailed out at this time. We look forward to introducing you to our new brain donor card experience in the coming months. Thank you for your patience and continued support of brain donation and clinical research.

Research Registry

Pledge Information

What are you signing up for? Check at least one box

I pledge to donate my brain to research after my death
I am interested in participating in clinical research while I am alive

Would you like to make your brain pledge public information?

Basic Information

Title

First Name

Middle Name

Last Name

Suffix

Country

Address

City

State/Province

Use abbreviated state name (Ex. New York = NY)

Postal Code

Phone Number

Confirm Email

Date of Birth (MM/DD/YYYY)

Race

Sex

Military Service

Military Branch

Military Status - Pre or Post 9/11?

If your service ENDED before 9/11/2001, select "Pre 9/11"

What college or university do you feel most connected to?

This could be where you attended, graduated, work, or have another connection

If applicable, list a second college or university that you feel most connected to

This could be where you attended, graduated, work, or have another connection

Exposure Information

This section asks about your history of brain trauma exposure. Complete this section to the best of your ability regarding your knowledge of the patient's brain injury history. You do not need to have experienced brain trauma in order to sign up for the Clinical Research Registry or Brain Donation Registry. We encourage you to sign up regardless of your brain trauma history.

Primary Exposure

Other - Primary Exposure

Years of Primary Exposure

If Primary Exposure was a sport, what is the highest level reached of the primary sport you played?

Secondary Exposure

How many concussions would you estimate you have suffered?

Referral Information

How did you hear about us?

If you selected other, how did you hear about us?

If you were referred by a military-related organization(s), which organization(s)? Select all that apply:

If you were referred by a military-related organization not listed here, which organization referred you?

If you were referred to sign up by a friend/family member, who referred you?

Contact Information

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Research Registry

The CLF Research Registry

Research Registry

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